After weeks of waiting, we got the confirmation call on September 4, 2012 that Liam has Angelman Syndrome. By the time that call came we were just relieved to have the diagnosis confirmed so we could move on. This blog is part of the moving on. It is our hope that it will be a source of information on Liam's progress, our coping, and simply a resource for increasing awareness of this rare genetic disorder.
Truly our little Liam is an angel, no pun intended. Yes, there is heartache and mourning on both Doug's and my part for the things that will possibly never be for our little Liam, however, there is also a more prevalent and growing feeling of the blessed privilege we have to be his parents; entrusted with his care and blessed by his presence thanks to a loving Heavenly Father.
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